We are just a family of five...three boys, a mom, a dad, a hamster, and dog. Welcome to our crazy world. Our adventures will make you laugh, cry, and pee in your pants...
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Wednesday, April 25, 2007


What a BUSY Wednesday!!! We started our morning with a 9am appointment with Early Interventions of Nevada. This was the appointment where they assessed Isaac for developmental delays that he has (which aren't many yet), but they will also be the team that we work with because he is expected to have many delays in the future. We have already been set up with appointments for feeding specialists, nutritionists, speech therapists, audiologist, and opthamologist...and once we have the heart surgery, they'll help coordinate the physical therapist and occupational therapist....whoooo! We made it out of that appointment by 11:30 to make it home for lunch to then rush to our 2pm appointment with the cardiologist. Here, Isaac had another echocardiogram. His stent looks like it is allowing blood to flow through the pulmonary artery...which is good, because they are hoping that blood flow will help open the artery more. Dr. Mayman (the cardiologist) received word back from Stanford that Isaac should have another heart cath soon...but, he wants to wait two more months (which is fine, because Isaac will have to be put under and on a ventilator). His sats (oxygen levels) were 81...which were a little lower than they have been, but he's not totally blue (only when he cries). We made it home to have dinner...Eli's favorite...breakfast for dinner!!! (French toast, bacon, pancakes...yummy!) I didn't have a chance to take any pictures today...but, check out the scanned picture. This is Isaac's heart...they drew it from the heart cath they did when he was first born. I put a picture of the normal heart beside it so that you could compare the pictures. We're hoping to make it to bed before midnight...because tomorrow we have an 8am appointment with the pediatrician to get Isaac's tongue clipped...he's tongue-tied (did I mention that before)...hopefully, it will be quick, not so painful...and then we're doctor free until next week!

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1 comments:

Grandma Judy said...

My poor poor baby. Make sure he gets lots of love and attention, which I'm sure he is.

MOM