We had NO appointments today!!!
Thursday, January 31, 2008
Wednesday, January 30, 2008
Mom thought I would eat tonight....
I showed her...I had other plans...
I'm trying to hide with my hood on...
but...I think Eli knows where I am!!
AHHH!!! It's Eli!!
Mom bought these headphones for me...
What do you think???
Tuesday, January 29, 2008
Gosh...look at how late I'm posting...oh...it's SO past my bedtime!
Monday, January 28, 2008
Sunday, January 27, 2008
We retired the frog pacifier...and Joe made a monkey one!
Two little monkeys!!!
Look at him hugging his monkey...too cute!
So...we took the "Goof Troop" to church today...
and Isaac needed a bath first thing this morning...
Because we "fed the bed" again...what a mess!
Friday, January 25, 2008
Dad brought home McDonald's french fries!!!
I don't know which one to eat first...
Thursday, January 24, 2008
So...give me your input. Any ideas?? I did make an appointment with the neurologist for next Wednesday. I guess I need to call an opthamologist also.??
Wednesday, January 23, 2008
The day got away from me...so, I'll post some cute pics tomorrow.
Tuesday, January 22, 2008
Monday, January 21, 2008
Sunday, January 20, 2008
Why are you taking pictures...I'm in distress!!
My cute little DiGeorge ears...they'll drive the girls crazy!
We're having a GREAT Sunday!
Saturday, January 19, 2008
As excited as I am to be going home...It's 8am and he's already thrown up 4 times (nothing but the mucus).
Friday, January 18, 2008
Once again...you're not going to believe the recent news...
We have a new plan...well, kind of:
Thursday, January 17, 2008
He just got wheeled out of the cat scan. They won't tell us any results...maybe tomorrow. He's still asleep...he'll be waking up soon and we can take him back to RMH.
We came back to RMH for a few hours. They are a little swamped here!!!
We're at the hospital waiting for our echo...but, Isaac was up ALL night last night. Coughing, throwing up, retching, then he'd repeat it all. No ONE got any sleep. He doesn't have a fever...so, I'm not sure if he's catching something...or this is just a bad retching day.
Wednesday, January 16, 2008
Sorry about the late post...but, we made it safely to Palo Alto, CA!!!
It's warmer here than in Vegas...what a treat! You know that I keep telling you that things just keep happening...well, would you believe that one of my sisters just moved to CA, and she was able to pick us up from the airport and let us borrow a car so that we didn't have to rent one. THEN, we get into our room at RMH...and it's twice as big as it usually is. We're on the top floor, vaulted ceiling, only 5 other rooms on this floor...it's AWESOME! We were able to take Mandy (that sister who's here) and her kids (which includes her husband) to Mexican food for dinner!!! MY FAVORITE! Then, we sent them back home with hugs and made a quick Target run for the supplies that we need. I've given Mr. Sunshine his bath and he's snoozing while he eats.
I was wondering if we really needed to be here so soon...but, Isaac spent yet another day losing more food then he kept in...so, I suppose we're where we should be. We'll all be sleeping soon for a PACKED day tomorrow. We have to report at 7:30am...with pre op stuff to do, people to talk to, an echo to have done, (I might suggest a chest xray...he's been choking alot and sounds junky), we report to pre-surgery area at 2:30 in preparation for our CAT scan....and we don't know if we'll have to spend the night at the hospital tomorrow or not...depending on how he does while he's sedated. WHOO....at least we're familiar with everything here...where to go, where to park, where to eat....and we've already seen familiar faces.
We should talk to Dr. Hanley's PA tomorrow and she should have an idea of what their plan is for surgery tomorrow....I'll take my laptop to the hospital and post while he's in his CAT scan!
Thanks for all your prayers...and for sending your love to Miss Kate and her family.
Tuesday, January 15, 2008
Isaac, trying to eat his g-tube...and the dog Eli made for him.
Still trying to eat that tube!
Eli just showing off his charm.....again!
This is how Isaac sits in his bouncy seat...seriously!
Still in the bouncy seat....propping the legs up...
Show off! and cheesy Eli striking a pose!
Side view...I'm still adorable...
I can't even believe that I have to type this...