ok...this has been going on for months...not regularly...UNTIL NOW. For the last two weeks...Isaac wakes up screaming. Not just once or twice....but, 15-20 times a night. Seriously...every 10-15 minutes. NOW, he's still in the crib beside my bed. So, the first scream (not gently cry), I get up, find his paci, tap his bum a few times, and tell him "good night". Then, in 15 more minutes, he'll scream...I'll get back up, give him his paci, and tell him that I am NOT getting him out of the crib and that he needs to go back to sleep. (now, I'm always checking the diaper, the head for fevers, checking to see if he's too hot or cold, checking the nose for snot...)then...if there's no problem...covering him up and going back to bed. BUT, this has been going on for TWO WEEKS NOW...where I am not getting any sleep and neither is Isaac.
- Night terrors or nightmares? How would I know...he can't tell me. If I put him in my bed...it helps for about an hour...then, he continues to wake up screaming. (and...I don't want to start sleeping with me and trying to break that habit--nor, do I want Joe to roll over and squish him)
- Leg pains? Common in DiGeorge kids. BUT, he can't tell me what hurts. I'll have to research it...but, I don't think anything shows up on xrays...and I have tried giving him Motrin before bed...doesn't help.
- Heart?? I know his heart beats faster than normal. AND, I've often told our card that I think he has moments where it beats faster than HIS normal, and I think that's what causes him to scream out and sometimes throw up. He's only worn a holter monitor for 24 hours...I might suggest wearing one longer (just to rule this one out).
- Oxygen levels?? I've been checking his levels before he goes to bed. He's been about 93-94...right at HIS level. So, I haven't been putting the o2 up his nose at night...BUT, could it be falling at night...does he have apnea? (he's never had a sleep study done). The canula just makes him so made and he wiggles so much at night that I'm still up all during the night unwrapping it from around his neck. (maybe I should put it on him tonight and see)
- He's just two?? Is he just smart enough now to know that he'd rather sleep with me and will scream until I cave in?? I use to think this..but, even in my bed, he wakes up screaming. So, I'm not sure about this one.
8 comments:
Happy birthday, Joe!!! Have a wonderful day!
Can your boys please come clean my house? :) I'll pay you, Chris!
The sleep thing is so tough because if there's no communication, then you are just left guessing. I guess rule out the things you can rule out...heart stuff, oxygen issues, etc. Have you guys tried signing with Isaac? Elijah never really got the hang of signing until he learned to talk, but there were a few signs he would do that helped us immensely when trying to figure out what was wrong.
Give Joe a big birthday hug for me today!! xo
I know you've probably tried this already, but maybe some soft music for Isaac to sleep by that would keep him company when he wakes up.?.
I love that teenage energy that kicks in every once in awhile for a big project like cleaning game rooms and stuff - yeah Chris!
AND . . . HAPPY BIRTHDAY JOE! Not only are you a great Dad and Husband, your a WONDERFUL son too. We love you and are proud to be your parents! (wish you weren't sick, not just because it's your birthday, but because people who work as hard as you do don't have time for "sick") Heres hoping that some birthday cake and your special cough syrup will make it all better. Hugs and kiss to you.
Happy Happy Birthday Joe.
Just put Isaac in the bed with you.
So what if he sleeps with you until he is 21! Bring back the emergency bed for Joe. (just kidding Joe)
Happy birthday Joe!! I didn't know that we shared a birthday week!!
Hang in there, Mama.
I hope you get some sleep soon! I'm glad I'm not the only one that still sleeps with their little guy in their room. It's so convienient to reach over and pat their bum to go back to sleep. If only Issac would go back to sleep right? Is he sleeping alot during the day?? I know cardiac kids have insomnia.. Owen does at least. Not quite that often though. GOOD LUCK. Maybe a sleep study would give you some insight?
Happy Birthday to your Hubby. I'm going to write a sleep post on my blog today. I was just thinking of all of that this morning and how I don't think I've ever shared our struggles about it. Hope you get some answers and some sleep!
It is SOOOOO CRAZY that u say he wakes up screaming.....oh my gosh, Madison does too...it's gotta be a Digeorge syndrome thing....my doc said some Digeorge children get night terrors....???? but then I was wondering about the leg thing too??? weird...well lemme know if you find out anymore?? and lets get together!!!!!:)
could it be reflux?? Maybe you could ask the doc for a trial of prevacid or something. If it doesn't make a difference, then you know that its not reflux and can cross that off your list.
Incidentally, did you know that the International Scientfic Cnvention for VCSEF is in July in SLC? I vote you cme up :)!!!!
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