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Friday, August 14, 2009

***Heart mama question***

This is happening lately..
but, noticeably twice tonight alone.

Isaac will be sitting down and playing with something...
all of sudden turn blue, and as soon as he can catch his breath...scream.

I immediately lay him down, hook him up to the sat monitor. He'll be in the high 80s by the time I hook him up...but, his heart rate will be in the 170s-180s.
(note...his resting rate is 120-130..and his awake rate is 140-150. that's already on the high end of normal..but, we're just watching it)

Then, I have to put a cool cloth on his head...and he passes out and naps for a while.
He wakes up and is fine.

This has happened on and off throughout the week...but, twice in the last 4 hours.

So...his heart is totally repaired and he has a cadaver valve that is leaking at a 6 out of 1-10. (10 meaning valve replacement is necessary)

Does anyone know if the valve leakage could cause Tet spells again...or if this sounds like his heart could be having arythmias? I'll keep note of these blue spells and maybe just go see the card next week.

I just thought he needed to poop or something else was causing all this blue face and screaming...but, I was right beside him tonight...and he wasn't doing anything to cause it.

hmmm...thinking caps everyone.
maybe I'm just a little over protective...but, I've worked too hard to keep this little man here with us...and my work isn't over yet!

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Hollie said...

Holy cow, how scary! My initial thought was tet spell, but if he's had his full repair, I don't know that would be the case. I would at least put in a call to the cardiologist, and then try to get him in for a visit. I wonder if being sick has just made his little heart have to work harder. Poor kiddo. Give him some hugs from us. I'll be keeping you in my prayers. I'm glad that you enjoyed your vacation, even if you got the sickies while you were there.

Wendy said...

Okay, Kathy, you've got me scared now, too! Turning blue and then screaming doesn't sound good to me...especially for a heart baby. Emma never did that even when her valve did need replacing.

I hope that you're able to talk to or see his cardiologist soon. I'll be praying that everything is well with your little man! Let us know!

Heart Hugs & Prayers,

Wendy (& Emma, too!)

Grandma Judy said...

I would put him back on the oxygen 24/7. Give his lungs a chance to get over that bronchitis. Just a Grandma's opinion!

Sarah said...

Sounds like a tet spell to me. Like you said though, how could that be? Evan does have a blue tinge to his lips and extremities - we noticed it again soon after our dr warned us that another surgery was looming. He does not have the spells though... I would def call the card. When you see it happening have you tried doing the knees to chest position to see if it pulls him out of it?

hayngrl101 said...

I know nothing of tet spells, so I am worthless. I'm not even going to venture a guess as to what is happening, but think that your gut is telling you to take him in. Get the tet spells ruled in or out, then report back and maybe we can brainstorm some more. Hugs. GOod LuCk. -kamaile

Tina:0) said...

Uff! I can't begin to imagine what it could be... Vaeh never really even had a tet spell before repair. Now the only time she turns colors is when she gets chilled in the tub. I can't remember... have they rulled out SVT? I know you went to the card about the high heart rate, right?!

I agree... a call to the card wouldn't hurt. Let them think you're protective... who wouldn't be?!?!

Give him some hugs for us!! And tell him he needs to stop scaring his Momma!!

Jane said...

Not sure Kathy.

How is his breathing when this is happening? Rapid? Is he retracting? Are his EKG's usually good? I wouldn't say Tet Spell if he is repaired, but perhaps a spasm in the scar tissue in his heart? Is he on any beta blockers?

I would take him in, just to be sure. They may be able to see something on echo or EKG and maybe do something non-surgical to help.

He is looking so cute lately, I just want to squeeze him.

The Portas said...

As far as we've been told, tet spells are not an expected thing once the final repair is complete, leakage or no leakage. Hmmmm. His card might have better insight? I just don't like blue spells AT ALL. I hope you guys can figure out what's going on with the little cutie. He looks like such a big boy in the latest pics!! xo