We are just a family of five...three boys, a mom, a dad, a hamster, and dog. Welcome to our crazy world. Our adventures will make you laugh, cry, and pee in your pants...

Monday, May 19, 2008

I went up to bed and FORGOT to post tonight!!!

SO...here's your quickie!
The immunologist didn't have the results back from the hospital lab yet (so, you think they could have called me). He did, however, tell me that I was not allowed to take Isaac around other kids, stores, church...(oops...I didn't tell him that I'd been doing ALL OF THE ABOVE!). He sounded really concerned when he reviewed Isaac's old lab results and saw that his CD-8 count was only 108 (should be above 500)...(now...he told me last time not to worry...and now he's the one more anxious to see the new results). He told me that they faxed another request to the hospital and that they would call me as soon as they received them. (so, that means that I'll call them everyday and ask).

Isaac had a good day. He's still on the O2:(....but, if that's what it takes to keep the food down...I'll drag that tank everywhere! We're still having to mix pedialyte with his milk to help keep it down also. He's such a peculiar little stinker!

Eli and Chris are fighting with each other today...I grounded them....their punishment is ROOM CLEANING tomorrow afternoon!!

That's all I've got....off to sleep now!

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Vanessa said...

I should be using the last bit of energy I have to write my own update but instead I'm checking on my babies!

I know the frustration of not having labs. I just looked up Arianna's CD-8 count and she is at 645 (last years was 385), so now I'm a little concerned about Isaac myself. I'm praying his numbers are going up. Since you take him everywhere and he hasn't had numerous illnesses I'm sure he is just fine. See...you should be living in the bubble we are living in...YEAH RIGHT. LOL!

Hopefully you'll hear something soon. I'll be checking back tomorrow.

Grandma Judy said...

Let's just wait until the numbers come in......we will start stressing then.

We are off to Charleston. Hope the weather is good today.

Be good to those boys. ALL brothers fight. It's in their genes! How many times did YOU ever hit YOUR sister?

BE good!

The Portas said...

Their next punishment can be coming over to clean the Porta's house!! :)

Hopefully you can get your results soon. It's so frustrating that it takes so much time and effort to get them into the parents' hands!

Keep all that yummy food down, Isaac!

Hollie said...

Your boys are just adorable. I have a 4 month old daughter with Tetrology of Fallot, Pulmonary Atresia, VSD and DiGeorge syndrome. Thank you for your blog, it's encouraging to know that you've been through all this and have survived with your sanity in check! Good luck with the feedings and especially with the labs.

Mandy said...

Hey you. I stayed up all night waiting for you to post. So how was the tball game? Chris and Eli are just being brothers. Don't punish them too much.

Tell Isaac to start getting better so we can play when he come to Cali in June. I really think he wants to go to Six Flags :)

crabby old man said...


Kelly said...

Oh man! Another waiting game! You are so gracious and patient. I hope they get the results soon!

Those naughty boys! I say room cleaning sounds great!

jencooper said...

Oh well - a kid has to get out and about every now and then!! I can't wait to hear what the counts say.

Can the boys get in trouble one more time? My house needs a good cleaning!!


PS - I TOTALLY missed the NKOTB thing on the Today show. Ugh - was it good?? I think that you and Mandy should plan a road trip to a concert - and then let me tag along. I'm a pretty cool chick!