RollersInVegas

Well...I hope that everyone had a FABULOUS Friday! (it's totally past my bedtime...but, I had to give you a brief run down of our day!)

I wake up to find the email I sent to the great doctor at Duke...has been REPLIED to already!!! How cool is that!?!? She told me that based on Isaac's tcells numbers, the fact that he had RSV and didn't need to be hospitalized....he isn't a candidate for the thymus transplant. We have to find out on the next panel HOW MANY new tcells are being made. Here's the thing....with DiGeorge kids, they have low immune systems...that VERY slowly will start to increase in numbers (and slowly means years). But, in Isaac's case, his tcells were within limits when he was born, then...4 months later, they dropped dramatically...now, 8 months later, they have dropped dramatically again (to the point where they are now). We aren't seeing the gradual slow trend from low cells to a normal range....we're going from normal to low. I've got to email her the results from the next set of labs. I'm not sure if he has to run out of cells before the transplant can happen, or if we have to show that he isn't making any new cells...OH...the questions!

Ok...so, I'm just thrilled that she emailed me...and that Isaac isn't SO drastically sick to the point where we need to schedule this surgery. I then take Eli to school and Isaac and I are off to the peds. It's a follow up from his ear infection 2 weeks ago (she wants to make sure that he's all clear before we go to Stanford). She checks his ears and they are not infected any more (YEAH)...but, they still have fluid in them. I show her Isaac's latest labs, talk about his immune system, and ask her if we can have another round of antibiotics to ensure that he doesn't get sick before surgery (and for the simple fact that he's gotten an ear infection every month for the past three months)....and she told me NO! (not with the exclamation point...but, still....no). She told me to just always bring him straight in if he has a fever. (are they kidding me....???) They just told me that if I let my baby get too sick he could die, but you won't even let me protect him from an ear infection!!! What in the world!?!?!

SO.....I pick up Eli from school....and a little boy hit Eli in the face today. GREAT! So, I asked Eli what he did...and he did the right thing...he told the teacher, he didn't hit him back!!! YEAH FOR ELI!!

Now...I'm home again and had emailed the VCFS team in NY and they emailed me back already too!!! (these guys are great!!!) He told me to not look at the actual number of tcells that Isaac has, but have them run the tests to find out if they are functioning. And...as healthy as he's been...they must be! (how encouraging!)

OK...so, now we're off to pick up Chris from school. I have to take him BACK to the peds because he needs a HEP A shot for school (or he can't take his exams next week). The nurse comes in the give Chris the shot (which he SCARED TO DEATH OF)...and there are TWO needles on her tray. Chris looked like he had seen a ghost, his face got pale...and I just smiled. It seems that he also needs the meningitis shot. oops! I had to let him squeeze my hand and he made it through (he needs to pop a valium before these visits!)

On our way home I asked him if he'd be ready for his last basketball game tomorrow. He looked at me and said, "Are you crazy? I'm still coughing and you just let them put a shot in each arm...how am I suppose to be able to dribble!?"
Well...I didn't think about a sore arm! And...he does still have a terrible cough. But, I have to admit...I will not be too upset if we miss his basketball game.

Lots of other crazy little things happened...but, overall...It's pizza night!!! WOOOHOO!!
Mr. Isaac had another AWESOME day....Isaac and I sat by the pool so that Eli could play with his new remote control submarine from Grandma Judy (thanks mom...he loves it!), Isaac and I went upstairs to the boys room so that Eli could show me his new moves on guitar hero (and wouldn't let me play because I needed to practice more)....and we caught a little bit of "Chicken Little" on the disney channel before they fell asleep.

Now....how about that for a FABULOUS FRIDAY! My baby IS going to be ok, my Eli is a mature, sub-driving, guitar hero playing sweetie, and Chris didn't have a heart attack at the doctors office...and JOE made it home before 8pm tonight....and I feel like a huge weight was lifted today. Even though I don't really know anymore about Isaac's future than I did yesterday...I know he's not at his worst yet...and there are plans if he ever gets there...so, I'll keep thinking about how to make a fancy bubble for my baby!!!